Monday, April 26, 2010
Bella Maria developed a lungs’ affection after the surgery for correcting the heart problems.
This is a very rare affection that appears to cardiac children especially after TOTAL CAVO PULMONARY ANASTOMOSIS. It is called PLASTIC BRONCHITIS and there are very few case reports in the world - approximately 40 - and very few of them are referring to children. The mortality rate is of 49% among children. The medical attendances are diverse. As many things have been tried for this affection, nobody can tell which is the best cure. It varies from person to person.
Now Maria is hospitalized in Deutsches Herzzentrum Munich, Germany. We came here a year ago for monitoring Bella Maria’s heart. Here we started a new life, a life very difficult for us and the girls. She is in the intensive care unit now and a team of wonderful doctors take care of her. Now she is in stable condition and we hope she’s on the right track.
We need more information regarding this affection, especially from people who outlived this disease, especially regarding children, cardiac children. We also know that even if they stabilize her condition and we can take her home, the disease may reappear. The doctors could only tell us that there is a long way, but they couldn’t explain exactly what this means.
Thank you,
Rodica Ionescu
This is a very rare affection that appears to cardiac children especially after TOTAL CAVO PULMONARY ANASTOMOSIS. It is called PLASTIC BRONCHITIS and there are very few case reports in the world - approximately 40 - and very few of them are referring to children. The mortality rate is of 49% among children. The medical attendances are diverse. As many things have been tried for this affection, nobody can tell which is the best cure. It varies from person to person.
Now Maria is hospitalized in Deutsches Herzzentrum Munich, Germany. We came here a year ago for monitoring Bella Maria’s heart. Here we started a new life, a life very difficult for us and the girls. She is in the intensive care unit now and a team of wonderful doctors take care of her. Now she is in stable condition and we hope she’s on the right track.
We need more information regarding this affection, especially from people who outlived this disease, especially regarding children, cardiac children. We also know that even if they stabilize her condition and we can take her home, the disease may reappear. The doctors could only tell us that there is a long way, but they couldn’t explain exactly what this means.
Thank you,
Rodica Ionescu
Labels: Mommy
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