Story between two worlds

plastic  bronchitis parents'  group on facebook posted this recently

''Our son just had the new technique to map out and image the lymph system to see how it flows. This is an MRI procedure where they inject dye into the lymphatic system and watch how it flows. There is a branch that breaks off the thoracic duct and flows right into his left lung. This is the answers they are finding for all plastic bronchitis paintents that they image. The Fontan causes extra lymph systems to grow off the thorastic duct and for these kids it will go to the path of least resistance which is the lungs. They just glued up this leaking lymph branches in a patient 3 weeks ago who was coughing up casts daily he has been cast free since this procedure is done. This procedure is to take the place for thorastic duct litigation because it has so many risks. This procedure only targets the extra lymph vessels that have grown and they glue them up no extra risk. The imaging today showed he has extra lymph vessels that have grown around his left lung and dump into it causing plastic bronchitis. I'm not talking about leaking into the chest cavity it's lymph fluid that dumps into the lungs which makes the casts. Though they said this is an easy fix now that they know what is going on and what causes plastic bronchitis in patients. Our son will next be scheduled to have these leaking lymph vessels glued up to stop his plastic bronchitis! We are very hopeful!''

 I thought that might be interesting for all the parents searching for solutions. Apparently , there is a confirmation that due Fontan circulation creates a break of thoracic duct and flows into the lungs . There is a new MRI  procedure which can help vizualise the breakage  . Also the doctors found a procedure to glue the vessels . 

There is maybe a new path and hope !